The Virtual Campfire: Bringing Out The Strength In Others In Combating Rare Diseases With Effie Parks

The Virtual Campfire: Bringing Out The Strength In Others In Combating Rare Diseases With Effie Parks

"I started a podcast not only for myself but also for that weeping parent sitting in their car to feel a little less alone." – Effie Parks

One of my recent favorite episodes of The Virtual Campfire is my interview with Effie Parks, "Bringing Out The Strength In Others In Combating Rare Diseases." Effie shared her personal struggles as a mom who fought for her child diagnosed with the rare CTNNB1 syndrome, an experience that taught her how to persevere amid many medical hardships. She talked about how her pursuit of support and inspiration from other people gave birth to the Once Upon a Gene show, which evolved into advocacy of her own.

Check out the episode here and many others here.